Riley Children's Health is Indiana's First Certified Duchenne Care Center
The muscular dystrophy clinic at Riley Children’s Health recently celebrated a new accolade – being named a Certified Duchenne Care Center (CCDC) by Parent Project Muscular Dystrophy, a leading Duchenne muscular dystrophy organization. This is an exciting step for both Riley and the Parent Project Muscular Dystrophy CDCC Program as it brings standardized Duchenne care to a new region of the country with the first certification in the state of Indiana.
As the largest provider of Duchenne care in Indiana, Riley Children’s serves patients from throughout Indiana and the surrounding region.
Under the leadership of Dr. Marcia Felker, the clinic’s director and lead neuromuscular neurologist, the team continues to grow with plans for expansion of their critical support network, including expanded nursing and social work services. This will further elevate the care they already provide to their patients, continuing to build upon the comprehensive, quality care they ensure their patients receive.
The program’s expansion is due in large part to a recent generous $5 million gift to the Riley Children’s Foundation from the Ackerman and Nicholoff families, who are Indiana natives and long-time supporters of the advancement of Duchenne care and research initiatives, with the goal of establishing Indiana’s first Certified Duchenne Care Center. “Our families are very excited and look forward to the opening of this new CDCC, knowing that the most comprehensive care will be offered to all ages of those afflicted with Duchenne and Becker,” said Brian Nicholoff.